Category Archives: Uncategorized

Blog for Mental Health 2013

I’ve had a few people alert me now (thanks!) to the Blog for Mental Health 2013 campaign, and since blogging for mental health is already something I believe in (and do on a semi-regular basis) I thought I would make a mention of this campaign briefly.

I pledge my commitment to the Blog For Mental Health 2013 Project.  I will blog about mental health topics not only for myself, but for others.  By displaying this badge, I show my pride, dedication, and acceptance for mental health.  I use this to promote mental health education in the struggle to erase stigma.

I have Bipolar Disorder type 1 as well as Generalized Anxiety Disorder and have struggled on and off for over ten years living with the symptoms of mental illness. I think it is important to be as open and honest as possible about what we experience and feel, not only to alleviate stigma but also to help others learn about themselves and grow as much as we do by sharing our stories.  Being able to be ourselves means less stress, less anxiety, and less bullying. Less hardship all around really!

Rather than pass this pledge on to five blogs, I’d prefer to take the route of saying that I urge each and every one of you to take the pledge if you blog about mental illness. Put it out there! Put into writing what you feel and why you feel it. Pass it on to others, and help tear down some walls.

Social Security Update, Part 3

Shortly after writing last week’s update on the phone call I got from social security (about my SSDI application) I received my first rejection letter.

Again, I must say I wasn’t very phased by this, because I understand that I will probably get two rejections before a potential acceptance.

I can see how a rejection letter could shake the very foundation of one’s being though. Reading the letter was like having needles poking into my stomach. I think it is human nature to feel sick when you’ve struggled and someone denies you acknowledgment of that.

I am in the process of contacting my advocate to get the ball rolling on the next step (the appeal), as I have 60 days from the date of receiving the rejection letter to request an appeal. Shouldn’t be a problem, and I’d like to do it much sooner to get things moving again.

That way I can hurry up and wait.

Social Security Update, Part 2

Something finally happened. No verdict has been reached in my social security disability case, but at least my case has been acknowledged.

I am someone who has a very difficult time talking on the phone to people I don’t know. I get really severe anxiety in many situations, anything from calling my workplace (in the past), to making a doctor’s appointment, to even ordering a pizza. I don’t know what it is, but that anxiety has left me having panic attacks (both about the prospect of talking on the phone as well as talking on the phone itself) on more than one occasion.

That said, I think you can understand that if I knew someone from the social security office was going to call me, I would have been a mess. I suppose at that rate, not knowing was a little bit helpful, but I was totally and completely thrown off when I got the call.

Then came the actual talking. The man on the other end of the receiver had questions about my condition. He wanted me to recount why I had lost my last job, how severe my symptoms were, and then (to my surprise) he asked about chronic headaches -something he was reading about in my medical files.

The bits about bipolar disorder I really think I can understand for the most part. Reflecting on being off my rocker in October is much less embarrassing now that I’ve had some time to really think it over, and I’ve had this blog to help me piece it all together.

The chronic headaches I have, however, are a different story entirely. I found myself at a loss for words, really unable to describe what neither myself (nor the doctors) understand. My head hurts, is really all I can tell you, and it hurts every day. Some days I can’t function because of it, other days I just push through. Subjective, yes, I know.

I don’t know if it was my anxiety or the man I had the conversation with or if I was just blanking out sporadically, but I have a vague recollection that I only answered half of the questions he asked. He was talking fast, my responses were slow, and I recall not having answered many of the questions before me moved on to the next.

That fact left my stomach in a series of painful knots as soon as I hung up the phone, and I spent the next two days fretting over what had taken place. Was I helpful to my case? Had I hurt my chances by not talking faster and answering more? I didn’t even know someone was going to call me! If I had known I could have prepared!

But… maybe they don’t want people too prepared. That could be part of it.

This whole thing has been very elusive and tricky and, at times, difficult to understand. Who are these people who decide who is disabled enough to warrant federal aid? I’d like to believe they are fresh, bright people with a substantial desire to help others… but I’m sure that is just brazen optimism on my part.

It is hard to willingly put yourself in a position where people are judging you without having mixed emotions I think. Feeling hopeful but defensive really leaves one open to having their feelings hurt.

In any case, I decided to stop thinking about it because the initial denial rate for SSDI is so high (and I certainly expect to be denied initially) that my awkward phone conversation couldn’t have really hurt me in the long run.

I know there is still a long way to go on this thing, but the best I can do is move forward and not allow it to drive me (entirely) crazy.

WEGO Health Activist Awards

Ok, so I am not someone who generally likes to toot their own horn, but I do believe in giving thanks where thanks are due.

The Bipolar Curious blog has been nominated, and now chosen as a finalist for the 2012 WEGO Health Activist Paperboy Award.

I don’t know who made the nomination, but I wanted to send out a quick thanks to all you readers for supporting this blog and, well, me. 

You can check out the line up of finalists for the Paperboy Award here, and RSVP for an interactive awards event Thursday March 28th featuring this (and several other Health Activist awards) by going here.

Thanks again folks. You rock.

the bipolar curious blog survey

Today marks the bipolar curious blog’s 300th post. 

For that reason, I wanted to do something a teensy bit different, so I’ve put together a survey.

You can take the bipolar curious blog survey here!

This survey is 9 questions, and aimed to help me learn more about the demographic of you (the reader) and your interaction with the blog.

The survey is 100% confidential, so please be as honest as possible when answering the questions. Nobody (myself included) will know it was you who made those answers.

If you could take a few minutes to fill out this brief survey, I would greatly appreciate it. It will help me when picking topics for blog posts, as well as give me some insight into who you (the reader) are.

Thanks folks, and happy 300th post!

Good Doctor, Bad Doctor

I have been lucky in finding a general physician who I really trust and like, but lately it seems like others have suddenly caught on -his schedule has been packed leaving me seeing someone else for a recent sinus infection.

It never ceases to amaze me how great one doctor can be, and how awful the next might be. I found myself met with zero bedside manner, a doctor who downplayed my symptoms, and then prescribed me (knowing I was uninsured) the most expensive medication possible for my ailment.

Now, I just wanted to take a brief moment to remind you that seeing a doctor should be like any other business. I expect to be a customer who is listened to and respected, and when I am not, I do not give repeat business.

There is no way to know what a doctor will be like until you work with them firsthand, but I urge you all to stand up for yourselves to demand a level of care you deserve. If a doctor is treating you poorly, chances are there is another doctor out there who you can work with more comfortably.

Finding a good doctor may mean having to deal with busier scheduling on their end, but in the end it is usually worth it.

As true as I believe this to be with my general physician, I think it is twice as true with my psychiatrist. Psychiatry is a very complicated practice, and finding a good psychiatrist who treats you with respect is often worth their weight in gold.

I just wanted to leave a reminder today that you are worth being treated with respect, but it is also up to you to find a doctor that treats you fairly.

Wipe That Grin Off Your Face(book)

I think I’ve finally reached a conclusion about how I feel about Facebook, and that is that I believe it to be more harmful to me than helpful.

I am not someone who feels compelled to compare my life to the lives of others, but that is something that becomes inevitable when facebook is in the equation.

I also have a hard time seeing masses of people being rude, intolerant, or desperate in a public forum. It makes me genuinely feel depressed, and from what I’ve read, that is a pretty common response.

I took a couple months away from facebook to see how I would feel about it. I didn’t miss it. In fact, my quality of life went up… and when I took the time to log in again, I instantly felt anxious and depressed.

For me, facebook is like being at a party, and the room is full of people who are all yelling out whatever pops into their head as soon as they’ve got an idea. I have a hard time being at parties like that in real life, so it seems silly to try to subject myself to a virtual one.

I guess I am more interested in having genuine conversations with people, and I only want to be involved in intimate aspects of peoples lives if they invite me in. Does that make sense? I feel like I am being a little vague here, but ultimately what I’m trying to say is that I really can’t do it anymore. I don’t want to participate in something that makes people feel wretched (myself included).

That leaves me in something of an awkward situation, because I know this blog has several followers on facebook. I think for now I am going to leave the blog page up (so posts keep being published there for the people who use that to connect back to the blog) but please do not send any messages to the page, as they will not be answered.

If you feel the desire to contact me, please continue to email host@thebipolarcuriousblog.com.

Psychiatric Warehousing

Last night I watched two and a half hours of news (something unheard of for me) just to see one story they kept dangling in front of my face about psychiatric warehousing.

Seattle local channel Komo 4 News ran a story about how there aren’t enough psychiatric inpatient hospital beds in the city for all of the patients that need them, with the result being that psychiatric patients are being housed on regular floors of hospitals (and thus are “warehoused”).

The story called this a “public health crisis”.

I was concerned for a minute when the story suddenly turned and nurses began speaking out about having been attacked by psychotic patients in the hospital who weren’t in the proper psychiatric facilities, but the story seemed to make a point that this warehousing of patients is not only unsafe for hospital staff and patients, but also means that people aren’t receiving the psychiatric care that they need.

Last year, they claimed 3000 people were committed in the state, and of those 2000 (2/3) had to wait for a bed in a psychiatric facility.

Personally, I’m beginning to feel very lucky. Around this time in 2011 I had a psychiatric inpatient hospitalization, and I managed to get a bed the same day (which was something like a miracle). I did, however, have the receptionist at the hospital on the phone for four hours for me in order to lock down a bed.

A quick tip? I’ve been told you are much more likely to get a bed for a psychiatric inpatient hospitalization if you are looking for one on a Friday. Apparently that is when the most discharges happen -right before the weekend.

Anyway, the story was extremely sensationalized but I feel glad that someone is trying to bring attention to how wretched it is in Seattle to try and receive psychiatric treatment.

For the whole story and a video, check it out here.

Back Into the Lion’s Den

Another difficult week. After forcing myself to sit at the computer this morning, I am at a total loss for what to say. My mind is racing with the fact that I have to, after all of this, contact my last employer again for them to fill out a form for me to get food stamps.

I don’t like being at the mercy of someone else, and I particularly don’t like being at the mercy of someone who has already taken the time to show me no mercy. But, I need the paperwork filled out so that I can get food stamps, so I can use that paperwork to put my student loans on forbearance. Funny world, isn’t it?

So what do you do when those pieces of the past that are the most triggering and troubling simply wont die? Is heading into this territory over and over again supposed to heal you, or does it just create more scars?

Today I don’t have the answer, but I have a hunch. Unfortunately, until this is taken care of I’ll be able to think of little else.

Catching Up

This is the first day in 5 days that I have had a day with no plans, and the constant activity has been catching up with me. My mood has dropped and I am going to have to hold off on posting until later this week. Working up any motivation right now is particularly difficult, so stay tuned.